U.S. flag

An official website of the United States government

Format

Send to:

Choose Destination

Optic atrophy 9(OPA9)

MedGen UID:
898858
Concept ID:
C4225384
Disease or Syndrome
Synonym: OPA9
 
Gene (location): ACO2 (22q13.2)
 
Monarch Initiative: MONDO:0014571
OMIM®: 616289

Definition

Optic atrophy-9 (OPA9) is characterized by onset of decreased visual acuity and optic disc pallor in the first decade of life, with severely reduced visual acuity and color vision deficits observed in the third decade. Although initially described as an autosomal recessive disease (Metodiev et al., 2014; Kelman et al., 2018; Gibson et al., 2020), autosomal dominant cases of OPA9 have also been reported (Charif et al., 2021). Mutation in the ACO2 gene also causes a neurodegenerative disorder, infantile cerebellar-retinal degeneration (ICRD; 614559), of which optic atrophy is a feature. Dominant and Recessive OPA9 From a cohort of approximately 1,000 patients with optic atrophy, Charif et al. (2021) identified 50 probands with dominant mutations in the ACO2 gene, and 11 patients with biallelic variants. There was no significant difference in distribution of mutation type, with two-thirds of all variants being missense mutations in both groups, and nonsense, frameshift, and splice site mutations comprising the remaining third. Age at onset of symptoms occurred during the first 2 decades, without significant difference between dominant and recessive cases. Visual acuity was significantly more affected in recessive cases than in dominant ones, with more than 60% of eyes from the recessive group having a visual acuity lower than 20/200, whereas more than 80% of eyes from the dominant group had a visual acuity above 20/200. Analysis of the optic disc as well as retinal nerve fiber layer thickness measurements indicated a preferential involvement of the temporal quadrant in both patient groups. Assessment of color vision revealed highly variable alterations, including protan, deutan, and tritan types of dyschromatopsia. Some patients had additional retinal changes, including macular microcysts as well as macular dystrophy in 1 case. Extraocular symptoms were observed in 6 (12%) of the dominant cases and in 3 (27%) of the recessive cases, including hearing impairment in 2 dominant cases, and late-onset cerebellar ataxia in 1 dominant case and in 1 recessive case. [from OMIM]

Clinical features

From HPO
Optic atrophy
MedGen UID:
18180
Concept ID:
C0029124
Disease or Syndrome
Atrophy of the optic nerve. Optic atrophy results from the death of the retinal ganglion cell axons that comprise the optic nerve and manifesting as a pale optic nerve on fundoscopy.
Red-green dyschromatopsia
MedGen UID:
102324
Concept ID:
C0155016
Disease or Syndrome
Difficulty with discriminating red and green hues.
Reduced visual acuity
MedGen UID:
65889
Concept ID:
C0234632
Finding
Diminished clarity of vision.
Paracentral scotoma
MedGen UID:
75740
Concept ID:
C0271197
Finding
Optic disc pallor
MedGen UID:
108218
Concept ID:
C0554970
Finding
A pale yellow discoloration of the optic disc (the area of the optic nerve head in the retina). The optic disc normally has a pinkish hue with a central yellowish depression.
Visual impairment
MedGen UID:
777085
Concept ID:
C3665347
Finding
Visual impairment (or vision impairment) is vision loss (of a person) to such a degree as to qualify as an additional support need through a significant limitation of visual capability resulting from either disease, trauma, or congenital or degenerative conditions that cannot be corrected by conventional means, such as refractive correction, medication, or surgery.

Professional guidelines

PubMed

Di Candia F, Di Iorio V, Tinto N, Bonfanti R, Iovino C, Rosanio FM, Fedi L, Iafusco F, Arrigoni F, Malesci R, Simonelli F, Rigamonti A, Franzese A, Mozzillo E
Ital J Pediatr 2023 Nov 30;49(1):158. doi: 10.1186/s13052-023-01553-1. PMID: 38037112Free PMC Article
Küchlin S, Ihorst G, Grotejohann B, Beisse F, Heinrich SP, Albrecht P, Ungewiss J, Wörner M, Hug MJ, Wolf S, Diem R, Lagrèze WA; TONE Study Group
Neurol Neuroimmunol Neuroinflamm 2023 Jul;10(4) Epub 2023 Apr 24 doi: 10.1212/NXI.0000000000200067. PMID: 37094997Free PMC Article
Delvecchio M, Iacoviello M, Pantaleo A, Resta N
Int J Environ Res Public Health 2021 Apr 30;18(9) doi: 10.3390/ijerph18094796. PMID: 33946243Free PMC Article

Recent clinical studies

Etiology

Haddad MA, Sei M, Sampaio MW, Kara-José N
J Pediatr Ophthalmol Strabismus 2007 Jul-Aug;44(4):232-40. doi: 10.3928/01913913-20070701-04. PMID: 17694828
Tzekov C, Cherninkova S, Gudeva T
Pediatr Neurosurg 1991-1992;17(6):317-20. doi: 10.1159/000120617. PMID: 1840820

Diagnosis

Haddad MA, Sei M, Sampaio MW, Kara-José N
J Pediatr Ophthalmol Strabismus 2007 Jul-Aug;44(4):232-40. doi: 10.3928/01913913-20070701-04. PMID: 17694828
Haddad MA, Lobato FJ, Sampaio MW, Kara-José N
Clinics (Sao Paulo) 2006 Jun;61(3):239-46. Epub 2006 Jun 30 doi: 10.1590/s1807-59322006000300009. PMID: 16832557
Tzekov C, Cherninkova S, Gudeva T
Pediatr Neurosurg 1991-1992;17(6):317-20. doi: 10.1159/000120617. PMID: 1840820
Yeates FM
Aust J Ophthalmol 1983 Nov;11(4):321-3. PMID: 6667205

Prognosis

Gibson S, Azamian MS, Lalani SR, Yen KG, Sutton VR, Scott DA
Am J Med Genet A 2020 Aug;182(8):1960-1966. Epub 2020 May 25 doi: 10.1002/ajmg.a.61634. PMID: 32449285
Haddad MA, Sei M, Sampaio MW, Kara-José N
J Pediatr Ophthalmol Strabismus 2007 Jul-Aug;44(4):232-40. doi: 10.3928/01913913-20070701-04. PMID: 17694828
Lim KH
Singapore Med J 1998 Mar;39(3):104-6. PMID: 9632967
Tzekov C, Cherninkova S, Gudeva T
Pediatr Neurosurg 1991-1992;17(6):317-20. doi: 10.1159/000120617. PMID: 1840820

Clinical prediction guides

Gibson S, Azamian MS, Lalani SR, Yen KG, Sutton VR, Scott DA
Am J Med Genet A 2020 Aug;182(8):1960-1966. Epub 2020 May 25 doi: 10.1002/ajmg.a.61634. PMID: 32449285
Lim KH
Singapore Med J 1998 Mar;39(3):104-6. PMID: 9632967

Supplemental Content

Table of contents

    Clinical resources

    Practice guidelines

    • PubMed
      See practice and clinical guidelines in PubMed. The search results may include broader topics and may not capture all published guidelines. See the FAQ for details.

    Recent activity

    Your browsing activity is empty.

    Activity recording is turned off.

    Turn recording back on

    See more...