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Osteofibrous dysplasia(OSFD)

MedGen UID:
895748
Concept ID:
C4085248
Finding
Synonyms: OSFD; Tibia, bowing of, with pseudarthrosis and pectus excavatum
Modes of inheritance:
Autosomal dominant inheritance
MedGen UID:
141047
Concept ID:
C0443147
Intellectual Product
Source: Orphanet
A mode of inheritance that is observed for traits related to a gene encoded on one of the autosomes (i.e., the human chromosomes 1-22) in which a trait manifests in heterozygotes. In the context of medical genetics, an autosomal dominant disorder is caused when a single copy of the mutant allele is present. Males and females are affected equally, and can both transmit the disorder with a risk of 50% for each child of inheriting the mutant allele.
 
Gene (location): MET (7q31.2)
 
Monarch Initiative: MONDO:0011806
OMIM®: 607278
Orphanet: ORPHA488265

Definition

Osteofibrous dysplasia (OSFD) is a tumor-like bone lesion that usually presents as a painless swelling or anterior bowing of the tibia (Park et al., 1993), although pain may occur in up to 25% of cases and presentation may follow pathologic fracture. Most reports of osteofibrous dysplasia describe isolated tibial lesions, although a significant subgroup describe isolated and ipsilateral fibular involvement. Cases with ulnar and radial involvement have been reported (summary by Hunter and Jarvis, 2002). OSFD is characterized by radiolucent lesions located at the periosteal surface of the diaphyseal cortex, almost exclusively of the tibia and fibula. These lesions are congenital and spontaneously resolve during skeletal maturation; the residuum is most commonly mild bowing at the affected site. Prior to their resolution, secondary complications such as nonunion fractures and pseudoarthrosis formation can occur. Histologically, OSFD lesions exhibit 'zonal architecture' characterized by spindle-shaped fibroblast-like cells in the center of the lesions that are progressively replaced with peripherally located, more differentiated cells from the osteoblastic lineage. The cells lying at the center of the lesions stain for markers of undifferentiated mesenchymal cell states, whereas bridging zones of osteoid with surface osteoblasts and embedded osteocytic cells are interspersed between the lesions. In OSFD, the unossified zones eventually mineralize after replacement with normal osteoid and, finally, bone. This histologic progression corresponds with the clinical and radiographic resolution of the lesions (summary by Gray et al., 2015). Hunter and Jarvis (2002) noted that there may be a relationship between osteofibrous dysplasia and adamantinoma of long bones (102660), although the latter condition usually presents at a later age. [from OMIM]

Clinical features

From HPO
Fibular hypoplasia
MedGen UID:
316909
Concept ID:
C1832119
Finding
Underdevelopment of the fibula.
Pathologic fracture
MedGen UID:
42095
Concept ID:
C0016663
Pathologic Function
A pathologic fracture occurs when a bone breaks in an area that is weakened secondarily to another disease process such as tumor, infection, and certain inherited bone disorders. A pathologic fracture can occur without a degree of trauma required to cause fracture in healthy bone.
Pseudoarthrosis
MedGen UID:
46175
Concept ID:
C0033785
Finding
A pathologic entity characterized by a developmental defect in a long bone leading to bending and pathologic fracture, with inability to form a normal bony callus with subsequent fibrous nonunion, leading to the pseudarthrosis (or "false joint").
Pectus excavatum
MedGen UID:
781174
Concept ID:
C2051831
Finding
A defect of the chest wall characterized by a depression of the sternum, giving the chest ("pectus") a caved-in ("excavatum") appearance.

Term Hierarchy

CClinical test,  RResearch test,  OOMIM,  GGeneReviews,  VClinVar  
  • CROGVOsteofibrous dysplasia

Professional guidelines

PubMed

Park JW, Lee C, Han I, Cho HS, Kim HS
J Pediatr Orthop 2018 Aug;38(7):e404-e410. doi: 10.1097/BPO.0000000000001197. PMID: 29782394
Parham DM, Bridge JA, Lukacs JL, Ding Y, Tryka AF, Sawyer JR
Pediatr Dev Pathol 2004 Mar-Apr;7(2):148-58. Epub 2004 Mar 17 doi: 10.1007/s10024-003-6065-z. PMID: 15022060
Ozaki T, Hamada M, Sugihara S, Kunisada T, Mitani S, Inoue H
J Pediatr Orthop B 1998 Jul;7(3):199-202. doi: 10.1097/01202412-199807000-00004. PMID: 9702669

Recent clinical studies

Etiology

Scholfield DW, Sadozai Z, Ghali C, Sumathi V, Douis H, Gaston L, Grimer RJ, Jeys L
Bone Joint J 2017 Mar;99-B(3):409-416. doi: 10.1302/0301-620X.99B3.38050. PMID: 28249983
Dickson BC, Gortzak Y, Bell RS, Ferguson PC, Howarth DJ, Wunder JS, Kandel RA
Virchows Arch 2011 Jul;459(1):109-13. Epub 2011 Jun 15 doi: 10.1007/s00428-011-1101-2. PMID: 21674157
Most MJ, Sim FH, Inwards CY
J Am Acad Orthop Surg 2010 Jun;18(6):358-66. doi: 10.5435/00124635-201006000-00008. PMID: 20511441
Dumitrescu CE, Collins MT
Orphanet J Rare Dis 2008 May 19;3:12. doi: 10.1186/1750-1172-3-12. PMID: 18489744Free PMC Article
Kahn LB
Skeletal Radiol 2003 May;32(5):245-58. Epub 2003 Mar 22 doi: 10.1007/s00256-003-0624-2. PMID: 12679847

Diagnosis

Liu R, Tong L, Wu H, Guo Q, Xu L, Sun Z, Yan H
J Orthop Surg Res 2024 Mar 27;19(1):204. doi: 10.1186/s13018-024-04682-3. PMID: 38539216Free PMC Article
Nascimento AF, Kilpatrick SE, Reith JD
Surg Pathol Clin 2021 Dec;14(4):723-735. Epub 2021 Oct 7 doi: 10.1016/j.path.2021.06.012. PMID: 34742490
El Beaino M, Wang WL, Alaraj SF, Gugala Z, Lin PP
Surg Oncol 2021 Sep;38:101626. Epub 2021 Jun 16 doi: 10.1016/j.suronc.2021.101626. PMID: 34280695
Steffner R
Cancer Treat Res 2014;162:31-63. doi: 10.1007/978-3-319-07323-1_3. PMID: 25070230
Most MJ, Sim FH, Inwards CY
J Am Acad Orthop Surg 2010 Jun;18(6):358-66. doi: 10.5435/00124635-201006000-00008. PMID: 20511441

Therapy

Schwarzkopf E, Tavarez Y, Healey JH, Hameed M, Prince DE
J Surg Oncol 2020 Aug;122(2):273-282. Epub 2020 Apr 25 doi: 10.1002/jso.25950. PMID: 32334443Free PMC Article
Çetinkaya M, Özkan H, Köksal N, Sarısözen B, Yazıcı Z
J Pediatr Orthop B 2012 Mar;21(2):183-6. doi: 10.1097/BPB.0b013e328344fd41. PMID: 21383639
Almeida Herrero F, Silvestre Muñoz A, Martinez Rodriguez M, Gomar Sancho F
Acta Orthop Belg 2006 Dec;72(6):786-9. PMID: 17260623
Bloem JL, van der Heul RO, Schuttevaer HM, Kuipers D
AJR Am J Roentgenol 1991 May;156(5):1017-23. doi: 10.2214/ajr.156.5.2017924. PMID: 2017924

Prognosis

Scholfield DW, Sadozai Z, Ghali C, Sumathi V, Douis H, Gaston L, Grimer RJ, Jeys L
Bone Joint J 2017 Mar;99-B(3):409-416. doi: 10.1302/0301-620X.99B3.38050. PMID: 28249983
Puchner SE, Varga R, Hobusch GM, Kasparek M, Panotopoulos J, Lang S, Windhager R, Funovics PT
Orthop Traumatol Surg Res 2016 Nov;102(7):925-932. Epub 2016 Oct 10 doi: 10.1016/j.otsr.2016.08.010. PMID: 27745864
Most MJ, Sim FH, Inwards CY
J Am Acad Orthop Surg 2010 Jun;18(6):358-66. doi: 10.5435/00124635-201006000-00008. PMID: 20511441
Gleason BC, Liegl-Atzwanger B, Kozakewich HP, Connolly S, Gebhardt MC, Fletcher JA, Perez-Atayde AR
Am J Surg Pathol 2008 Mar;32(3):363-76. doi: 10.1097/PAS.0b013e318150d53e. PMID: 18300815
Kahn LB
Skeletal Radiol 2003 May;32(5):245-58. Epub 2003 Mar 22 doi: 10.1007/s00256-003-0624-2. PMID: 12679847

Clinical prediction guides

Scholfield DW, Sadozai Z, Ghali C, Sumathi V, Douis H, Gaston L, Grimer RJ, Jeys L
Bone Joint J 2017 Mar;99-B(3):409-416. doi: 10.1302/0301-620X.99B3.38050. PMID: 28249983
Taylor RM, Kashima TG, Ferguson DJ, Szuhai K, Hogendoorn PC, Athanasou NA
Mod Pathol 2012 Jan;25(1):56-64. Epub 2011 Oct 7 doi: 10.1038/modpathol.2011.141. PMID: 21983933
Most MJ, Sim FH, Inwards CY
J Am Acad Orthop Surg 2010 Jun;18(6):358-66. doi: 10.5435/00124635-201006000-00008. PMID: 20511441
Gleason BC, Liegl-Atzwanger B, Kozakewich HP, Connolly S, Gebhardt MC, Fletcher JA, Perez-Atayde AR
Am J Surg Pathol 2008 Mar;32(3):363-76. doi: 10.1097/PAS.0b013e318150d53e. PMID: 18300815
Maki M, Athanasou N
Hum Pathol 2004 Jan;35(1):69-74. doi: 10.1016/j.humpath.2003.07.008. PMID: 14745727

Recent systematic reviews

McCullough MC, Arkader A, Ariani R, Lightdale-Miric N, Tolo V, Stevanovic M
J Reconstr Microsurg 2020 Jun;36(5):386-396. Epub 2020 Feb 23 doi: 10.1055/s-0040-1702147. PMID: 32088922

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