U.S. flag

An official website of the United States government

Format

Send to:

Choose Destination

Hyperandrogenism, nonclassic type, due to 21-hydroxylase deficiency

MedGen UID:
348518
Concept ID:
C1859995
Disease or Syndrome
Synonym: Hyperandrogenism, Nonclassic Type, due to 21-Hydroxylase Deficiency
 
OMIM®: 201910; 613815

Definition

21-hydroxylase deficiency is an inherited disorder that affects the adrenal glands. The adrenal glands are located on top of the kidneys and produce a variety of hormones that regulate many essential functions in the body. In people with 21-hydroxylase deficiency, the adrenal glands produce excess androgens, which are male sex hormones.

There are three types of 21-hydroxylase deficiency. Two types are classic forms, known as the salt-wasting and simple virilizing types. The third type is called the non-classic type. The salt-wasting type is the most severe, the simple virilizing type is less severe, and the non-classic type is the least severe form.

Males and females with either classic form of 21-hydroxylase deficiency tend to have an early growth spurt, but their final adult height is usually shorter than others in their family. Additionally, affected individuals may have a reduced ability to have biological children (decreased fertility). Females may also develop excessive body hair growth (hirsutism), male pattern baldness, and irregular menstruation.

Approximately 75 percent of individuals with classic 21-hydroxylase deficiency have the salt-wasting type. Hormone production is extremely low in this form of the disorder. Affected individuals lose large amounts of sodium in their urine, which can be life-threatening in early infancy. Babies with the salt-wasting type can experience poor feeding, weight loss, dehydration, and vomiting. Individuals with the simple virilizing form do not experience salt loss.

In both the salt-wasting and simple virilizing forms of this disorder, females typically have external genitalia that do not look clearly male or female. Males usually have male-typical genitalia but the testes may be small.

Females with the non-classic type of 21-hydroxylase deficiency have female-typical genitalia. As affected females get older, they may experience hirsutism, male pattern baldness, irregular menstruation, and decreased fertility. Males with the non-classic type may have early beard growth and small testes. Some individuals with this type of 21-hydroxylase deficiency have no symptoms of the disorder. [from MedlinePlus Genetics]

Professional guidelines

PubMed

Ambroziak U, Bednarczuk T, Ginalska-Malinowska M, Małunowicz EM, Grzechocińska B, Kamiński P, Bablok L, Przedlacki J, Bar-Andziak E
Endokrynol Pol 2010 Jan-Feb;61(1):142-55. PMID: 20205117
Merke DP, Bornstein SR, Avila NA, Chrousos GP
Ann Intern Med 2002 Feb 19;136(4):320-34. doi: 10.7326/0003-4819-136-4-200202190-00012. PMID: 11848730

Recent clinical studies

Etiology

Moura-Massari VO, Cunha FS, Gomes LG, Bugano Diniz Gomes D, Marcondes JA, Madureira G, de Mendonca BB, Bachega TA
PLoS One 2016;11(2):e0148548. Epub 2016 Feb 5 doi: 10.1371/journal.pone.0148548. PMID: 26848581Free PMC Article
Reisch N, Högler W, Parajes S, Rose IT, Dhir V, Götzinger J, Arlt W, Krone N
J Clin Endocrinol Metab 2013 Oct;98(10):E1620-5. Epub 2013 Aug 12 doi: 10.1210/jc.2013-1306. PMID: 23940125
Ambroziak U, Bednarczuk T, Ginalska-Malinowska M, Małunowicz EM, Grzechocińska B, Kamiński P, Bablok L, Przedlacki J, Bar-Andziak E
Endokrynol Pol 2010 Jan-Feb;61(1):142-55. PMID: 20205117
Ezquieta B, Oyarzabal M, Barrio R, Luzuriaga C, Hermoso F, Lechuga JL, Quinteiro S, Rodríguez A, Labarta JI, Gutierrez Macias A, Gallego M, Bellón JM
Horm Res 2009 Jan;71(1):28-37. Epub 2008 Nov 27 doi: 10.1159/000173739. PMID: 19039234
Merke DP, Bornstein SR, Avila NA, Chrousos GP
Ann Intern Med 2002 Feb 19;136(4):320-34. doi: 10.7326/0003-4819-136-4-200202190-00012. PMID: 11848730

Diagnosis

Moura-Massari VO, Cunha FS, Gomes LG, Bugano Diniz Gomes D, Marcondes JA, Madureira G, de Mendonca BB, Bachega TA
PLoS One 2016;11(2):e0148548. Epub 2016 Feb 5 doi: 10.1371/journal.pone.0148548. PMID: 26848581Free PMC Article
Reisch N, Högler W, Parajes S, Rose IT, Dhir V, Götzinger J, Arlt W, Krone N
J Clin Endocrinol Metab 2013 Oct;98(10):E1620-5. Epub 2013 Aug 12 doi: 10.1210/jc.2013-1306. PMID: 23940125
Ambroziak U, Bednarczuk T, Ginalska-Malinowska M, Małunowicz EM, Grzechocińska B, Kamiński P, Bablok L, Przedlacki J, Bar-Andziak E
Endokrynol Pol 2010 Jan-Feb;61(1):142-55. PMID: 20205117
Barbaro M, Baldazzi L, Balsamo A, Lajic S, Robins T, Barp L, Pirazzoli P, Cacciari E, Cicognani A, Wedell A
J Mol Med (Berl) 2006 Jun;84(6):521-8. Epub 2006 Mar 16 doi: 10.1007/s00109-006-0043-7. PMID: 16541276
Merke DP, Bornstein SR, Avila NA, Chrousos GP
Ann Intern Med 2002 Feb 19;136(4):320-34. doi: 10.7326/0003-4819-136-4-200202190-00012. PMID: 11848730

Therapy

Ambroziak U, Bednarczuk T, Ginalska-Malinowska M, Małunowicz EM, Grzechocińska B, Kamiński P, Bablok L, Przedlacki J, Bar-Andziak E
Endokrynol Pol 2010 Jan-Feb;61(1):142-55. PMID: 20205117

Prognosis

Barbaro M, Baldazzi L, Balsamo A, Lajic S, Robins T, Barp L, Pirazzoli P, Cacciari E, Cicognani A, Wedell A
J Mol Med (Berl) 2006 Jun;84(6):521-8. Epub 2006 Mar 16 doi: 10.1007/s00109-006-0043-7. PMID: 16541276

Clinical prediction guides

Moura-Massari VO, Cunha FS, Gomes LG, Bugano Diniz Gomes D, Marcondes JA, Madureira G, de Mendonca BB, Bachega TA
PLoS One 2016;11(2):e0148548. Epub 2016 Feb 5 doi: 10.1371/journal.pone.0148548. PMID: 26848581Free PMC Article
Ezquieta B, Oyarzabal M, Barrio R, Luzuriaga C, Hermoso F, Lechuga JL, Quinteiro S, Rodríguez A, Labarta JI, Gutierrez Macias A, Gallego M, Bellón JM
Horm Res 2009 Jan;71(1):28-37. Epub 2008 Nov 27 doi: 10.1159/000173739. PMID: 19039234
Barbaro M, Baldazzi L, Balsamo A, Lajic S, Robins T, Barp L, Pirazzoli P, Cacciari E, Cicognani A, Wedell A
J Mol Med (Berl) 2006 Jun;84(6):521-8. Epub 2006 Mar 16 doi: 10.1007/s00109-006-0043-7. PMID: 16541276

Supplemental Content

Table of contents

    Clinical resources

    Practice guidelines

    • PubMed
      See practice and clinical guidelines in PubMed. The search results may include broader topics and may not capture all published guidelines. See the FAQ for details.

    Recent activity

    Your browsing activity is empty.

    Activity recording is turned off.

    Turn recording back on

    See more...