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Imerslund-Grasbeck syndrome type 1(IGS1)

MedGen UID:
865256
Concept ID:
C4016819
Finding
Synonyms: IGS1; Imerslund-Gräsbeck syndrome 1; MEGALOBLASTIC ANEMIA 1; Megaloblastic anemia 1, Finnish type
 
Gene (location): CUBN (10p13)
 
Monarch Initiative: MONDO:0100156
OMIM®: 261100

Definition

3-Methylglutaconic aciduria type I (MGCA1) is a rare autosomal recessive disorder of leucine catabolism. The metabolic landmark is urinary excretion of 3-methylglutaconic acid (3-MGA) and its derivatives 3-methylglutaric acid (3-MG) and 3-hydroxyisovaleric acid (3-HIVA). Two main presentations have been described: one with onset in childhood associated with the nonspecific finding of psychomotor retardation, and the other with onset in adulthood of a progressive neurodegenerative disorder characterized by ataxia, spasticity, and sometimes dementia; these patients develop white matter lesions in the brain. However, some asymptomatic pediatric patients have been identified by newborn screening and show no developmental abnormalities when reexamined later in childhood (summary by Wortmann et al., 2010). Genetic Heterogeneity and Classification of Methylglutaconic Aciduria Methylglutaconic aciduria is a clinically and genetically heterogeneous disorder. Type II MGCA (MGCA2), also known as Barth syndrome (BTHS; 302060), is caused by mutation in the tafazzin gene (TAZ; 300394) on chromosome Xq28. It is characterized by mitochondrial cardiomyopathy, short stature, skeletal myopathy, and recurrent infections; cognitive development is normal. Type III MGCA (MGCA3; 258501), caused by mutation in the OPA3 gene (606580) on chromosome 19q13, involves optic atrophy, movement disorder, and spastic paraplegia. In types II and III, the elevations of 3-methylglutaconate and 3-methylglutarate in urine are modest. Type IV MGCA (MGCA4; 250951) represents an unclassified group of patients who have severe psychomotor retardation and cerebellar dysgenesis. Type V MGCA (MGCA5; 610198), caused by mutation in the DNAJC19 gene (608977) on chromosome 3q26, is characterized by early-onset dilated cardiomyopathy with conduction defects, nonprogressive cerebellar ataxia, testicular dysgenesis, and growth failure in addition to 3-methylglutaconic aciduria (Chitayat et al., 1992; Davey et al., 2006). Type VI MGCA (MGCA6; 614739), caused by mutation in the SERAC1 gene (614725) on chromosome 6q25, includes deafness, encephalopathy, and a Leigh-like syndrome. Type VII MGCA (MGCA7B, 616271 and MGCA7A, 619835), caused by mutation in the CLPB gene (616254) on chromosome 11q13, includes cataracts, neurologic involvement, and neutropenia. Type VIII MGCA (MGCA8; 617248) is caused by mutation in the HTRA2 gene (606441) on chromosome 2p13. Type IX MGCA (MGCA9; 617698) is caused by mutation in the TIMM50 gene (607381) on chromosome 19q13. Eriguchi et al. (2006) noted that type I MGCA is very rare, with only 13 patients reported in the literature as of 2003. Wortmann et al. (2013) proposed a pathomechanism-based classification for 'inborn errors of metabolism with 3-methylglutaconic aciduria as discriminative feature.' [from OMIM]

Additional description

From MedlinePlus Genetics
Imerslund-Gräsbeck syndrome is a condition caused by low levels of vitamin B12 (also known as cobalamin). The primary feature of this condition is a blood disorder called megaloblastic anemia. In this form of anemia, which is a disorder characterized by the shortage of red blood cells, the red cells that are present are abnormally large. About half of people with Imerslund-Gräsbeck syndrome also have high levels of protein in their urine (proteinuria). Although proteinuria can be an indication of kidney problems, people with Imerslund-Gräsbeck syndrome appear to have normal kidney function.

Imerslund-Gräsbeck syndrome typically begins in infancy or early childhood. The blood abnormality leads to many of the signs and symptoms of the condition, including an inability to grow and gain weight at the expected rate (failure to thrive), pale skin (pallor), excessive tiredness (fatigue), and recurring gastrointestinal or respiratory infections. Other features of Imerslund-Gräsbeck syndrome include mild neurological problems, such as weak muscle tone (hypotonia), numbness or tingling in the hands or feet, movement problems, delayed development, or confusion. Rarely, affected individuals have abnormalities of organs or tissues that make up the urinary tract, such as the bladder or the tubes that carry fluid from the kidneys to the bladder (the ureters).  https://medlineplus.gov/genetics/condition/imerslund-grasbeck-syndrome

Clinical features

From HPO
Proteinuria
MedGen UID:
10976
Concept ID:
C0033687
Finding
Increased levels of protein in the urine.
Microscopic hematuria
MedGen UID:
65997
Concept ID:
C0239937
Finding
Microscopic hematuria detected by dipstick or microscopic examination of the urine.
Confusion
MedGen UID:
3587
Concept ID:
C0009676
Mental or Behavioral Dysfunction
Lack of clarity and coherence of thought, perception, understanding, or action.
Paresthesia
MedGen UID:
14619
Concept ID:
C0030554
Disease or Syndrome
Abnormal sensations such as tingling, pricking, or numbness of the skin with no apparent physical cause.
Dementia
MedGen UID:
99229
Concept ID:
C0497327
Mental or Behavioral Dysfunction
A loss of global cognitive ability of sufficient amount to interfere with normal social or occupational function. Dementia represents a loss of previously present cognitive abilities, generally in adults, and can affect memory, thinking, language, judgment, and behavior.
Somatic sensory dysfunction
MedGen UID:
1790456
Concept ID:
C5551413
Finding
An abnormality of the primary sensation that is mediated by peripheral nerves (pain, temperature, touch, vibration, joint position). The word hypoesthesia (or hypesthesia) refers to a reduction in cutaneous sensation to a specific type of testing.
Megaloblastic anemia
MedGen UID:
1527
Concept ID:
C0002888
Disease or Syndrome
Anemia characterized by the presence of erythroblasts that are larger than normal (megaloblasts).
Cobalamin deficiency
MedGen UID:
21880
Concept ID:
C0042847
Disease or Syndrome
The concentration of vitamin B12 in the blood circulation is below the lower limit of normal.
Malabsorption of Vitamin B12
MedGen UID:
852749
Concept ID:
C0750292
Finding
Abnormal blood folate concentration
MedGen UID:
866690
Concept ID:
C4021037
Finding
Any deviation from the normal concentration of folate in the blood circulation.

Recent clinical studies

Etiology

Madhavan S, Vijayakumar M, Rajajee S, Nammalwar BR
Indian Pediatr 2009 Mar;46(3):251-3. PMID: 19346573

Diagnosis

Levin-Iaina N, Dinour D, Morduchowicz G, Ganon L, Holtzman EJ
Nephron Clin Pract 2011;118(2):c67-71. Epub 2010 Dec 8 doi: 10.1159/000320391. PMID: 21150213

Therapy

Levin-Iaina N, Dinour D, Morduchowicz G, Ganon L, Holtzman EJ
Nephron Clin Pract 2011;118(2):c67-71. Epub 2010 Dec 8 doi: 10.1159/000320391. PMID: 21150213
Madhavan S, Vijayakumar M, Rajajee S, Nammalwar BR
Indian Pediatr 2009 Mar;46(3):251-3. PMID: 19346573

Prognosis

Levin-Iaina N, Dinour D, Morduchowicz G, Ganon L, Holtzman EJ
Nephron Clin Pract 2011;118(2):c67-71. Epub 2010 Dec 8 doi: 10.1159/000320391. PMID: 21150213

Clinical prediction guides

Sayli TR, Başak AN, Gümrük F, Gürgey A, Altay C
Pediatr Hematol Oncol 1994 Mar-Apr;11(2):223-5. doi: 10.3109/08880019409141661. PMID: 8204449

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