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National Guideline Alliance (UK). Developmental follow-up of children and young people born preterm. London: National Institute for Health and Care Excellence (NICE); 2017 Aug. (NICE Guideline, No. 72.)
2.1. What is a NICE guideline?
National Institute for Health and Care Excellence (NICE) guidelines are recommendations for the care of individuals in specific clinical conditions or circumstances within the NHS – from prevention and self-care through primary and secondary care to more specialised services. We base our clinical guidelines on the best available research evidence, with the aim of improving the quality of healthcare. We use predetermined and systematic methods to identify and evaluate the evidence relating to specific review questions.
NICE clinical guidelines can:
- provide recommendations for the treatment and care of people by healthcare professionals
- be used to develop standards to assess the clinical practice of individual healthcare professionals
- be used in the education and training of healthcare professionals
- help patients to make informed decisions
- improve communication between patients and healthcare professionals.
While guidelines assist the practice of healthcare professionals, they do not replace their knowledge and skills.
We produce our guidelines using the following steps:
- The guideline topic is referred to NICE from the Department of Health.
- Stakeholders register an interest in the guideline and are consulted throughout the development process.
- The scope is prepared by the National Guideline Alliance (NGA).
- The NGA establishes a Guideline Committee.
- A draft guideline is produced after the group assesses the available evidence and makes recommendations.
- There is a consultation on the draft guideline.
- The final guideline is produced.
2.2. Remit
NICE received the remit for this guideline from the Department of Health. It commissioned the NGA to produce the guideline.
The remit for this guideline is to develop a clinical guideline on the developmental follow-up of preterm babies.
2.3. Who developed this guideline?
A multidisciplinary guideline Committee comprising healthcare professionals and researchers as well as lay members developed this guideline (see Table 1).
The Committee met every 4 to 6 weeks during the development of the guideline. At the start of the development process all group members were required to declare interests including consultancies, fee-paid work, shareholdings, fellowships and support from the healthcare industry in accordance with NICE’s policy on Conflicts of Interest. At all subsequent group meetings, members declared all subsequent potential conflicts of interest.
Members were either required to withdraw completely or for part of the discussion if their declared interest made it appropriate. The details of declared interests and the actions taken are shown in Appendix C:.
Staff from the NGA provided methodological support and guidance for the development process. The team working on the guideline included a guideline lead, project manager, systematic reviewers, health economists and information scientists. They undertook systematic searches of the literature, appraised the evidence, conducted data analysis and cost-effectiveness analysis (where appropriate) and drafted the guideline in collaboration with the Committee.
2.4. What the guideline covers
2.4.1. Groups that will be covered
This guideline covers the following groups:
- Babies, children and young people under 18 years who were born preterm (less than 37 weeks of pregnancy).
2.4.2. Key clinical issues that will be covered
The following clinical issues are covered in this guideline:
- The risk of developmental problems (such as feeding difficulties) and developmental disorders (such as cerebral palsy or autism) in relation to gestational age at birth for babies, children and young people who were born preterm, and other factors that might affect their risk.
- Identifying developmental problems and disorders in babies, children and young people who were born preterm.
- Providing information about the development of preterm babies for parents and carers and children and young people who were born preterm.
- Providing support (for example, help with feeding difficulties, including continuing breastfeeding if appropriate, and with parent child interaction) for babies, children and young people who were born preterm and their parents and carers.
- Service delivery for developmental follow-up after preterm birth.
For further details please refer to the scope in Appendix A: and review questions in Table 4.
2.5. Other versions of the guideline
NICE produce a number of versions of this guideline:
- The ‘short guideline’ lists the recommendations, context and recommendations for research.
- NICE Pathways brings together all connected NICE guidance.
2.5.1. Clinical issues that will not be covered
This guideline does not cover:
- Diagnosing and managing developmental disorders such as autism and cerebral palsy. These areas are covered by existing NICE guidance on autism diagnosis in children and young people and autism: the management and support of children and young people on the autism spectrum, and in guidance being developed on the diagnosis and management of cerebral palsy in children and young people.
- Reducing the risk of preterm birth.
2.6. Relationship between the guidance and other NICE guidance
- Preterm labour and birth (2015). NICE guideline 25.
- Postnatal care up to 8 weeks after birth (2006). NICE guideline 37.
- Autism spectrum disorder in under 19s: recognition, referral and diagnosis (2011). NICE guideline 128.
- Spasticity in under 19s: management (2012). NICE guideline 145
- Mental health problems in people with learning disabilities: prevention, assessment and management (2016). NICE guideline 53
- Cerebral palsy in under 25s: diagnosis and management. NICE guideline. Publication expected January 2017
- Intrapartum care for high risk women. NICE guideline. Publication expected November 2017.
- Faltering growth - recognition and management of faltering growth in children. Publication expected October 2017.
- Social and emotional wellbeing in secondary education (2009). Public health guideline 20.
- Social and emotional wellbeing in primary education (2008). Public health guideline 12.
- Patient experience in adult NHS services: improving the experience of care for people using adult NHS services (2012). Clinical guideline 138.
- Sepsis: recognition, diagnosis and early management. NICE guideline 51
- Neonatal infection (early onset): antibiotics for prevention and management (2012). Clinical guideline 149
- Development of the guideline - Developmental follow-up of children and young peo...Development of the guideline - Developmental follow-up of children and young people born preterm
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